22 Jun COVID POTS survey
Persistent symptoms after a SARS-CoV-2 infection have been widely reported in the lay press and scientific literature. This has been described as post-COVID syndrome, long COVID, or post-acute sequalae of SARS-CoV (PASC). There are increasing reports on various manifestations of post-viral autonomic dysfunction developing in a subset of these patients, including post-COVID POTS.
Here we hope to survey clinicians who regularly see patients with autonomic disorders to capture their experiences with the following:
- To determine whether autonomic clinicians are seeing POTS or other forms of autonomic dysfunction after COVID-19 infection;
- To determine whether autonomic clinicians are seeing POTS after COVID-19 vaccination, and;
- To determine whether patients with premorbid POTS are at risk of symptom exacerbation after COVID-19 infection or vaccination.
This survey takes about 5 minutes and is aimed at Autonomic Specialists. We understand it is limited in scope, but it is a starting point and we really appreciate your assistance and time. We will not publish your name or contact information, but request it so that we can be sure the individuals completing this survey are clinicians. We hope to move forward with more patient-level information gathering as part of a prospective registry study. If you would like to collaborate, please be sure to include your email address and notes below, reach out to Nathaniel.M.Robbins@dartmouth.edu
Link to the survey: https://redcap.hitchcock.org/redcap/surveys/?s=KNJK3M9CL7
Nathaniel M. Robbins, MD
Assistant Professor of Neurology, Dartmouth Geisel School of Medicine
Director, Clinical Operations
Director, DHMC Center for Autonomic Disorders
Department of Neurology
Lauren Stiles, JD
Research Assistant Professor of Neurology
Renaissance School of Medicine, Stony Brook University
Aboubacar Cherif
Clinical Resarch Assistant
Department of Neurology, Dartmouth-Hitchcock Medical Center